**CLOSED** European Patients Forum Survey on Patients’ Perspective on Electronic Health Records

by member 107


The aim of this survey is to gain knowledge on patients’ and patients’ organizations’ perspectives and experiences on electronic health records. 

How will the results of this survey be used?

EPF is launching this survey on the patients’ perspective on electronic health records (EHRs) in order to inform and further develop our advocacy work in this area. The data and information generated from this survey will provide extremely useful patient evidence and will help to support EPF’s position and policy proposals.

What are Electronic Health Records (EHRs)?

Electronic health records (EHR) are records of patients’ health/medical information held in a digital format. The official definition is: “A comprehensive medical record or similar documentation of the past and present physical and mental state of health of an individual in electronic form and providing for ready availability of these data for medical treatment and other closely related purposes”.

Who are the targeted respondents? 

We aim to collect information from individual patients with chronic or long term conditions and their informal carers, patient organizations, and patient representatives. You do not need in-depth knowledge on healthcare to complete this survey, questions are primarily about your experience and there are no wrong or right answers. Please complete the entire survey. We will unfortunately not be able to use data and analyze results from partially completed surveys.

How much time will it take?

The survey takes about 20 minutes

Will my identity be published?

The survey is anonymous. We only ask for information necessary to analyzing the results, e.g., demographic and country information.



  • Experience with chronic or long term conditions, either directly or in capacity as informal carer for someone who has them, OR
  • Patient representative (e.g. working for a patient organization)


  • From home
  • Survey
  • 20 minutes
  • Anywhere

Receive: N/A

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